Guitar hero....

Just thought I'd share this cute video with you...CeJae was playing guitar hero with his dad tonight for the first time in a long time and really got into it.

Summer fun!!!

We have been having a blast since CeJae has got better and since the rain has finally stopped. I have to give full credit to our fabulous new neighborhood and the kids on it. There's no way my kids would be having so much fun if we wouldn't of moved out of those dreadful townhouses. Cierra and CeJae have made so many great new friends. The last few days have been getting hot and so they have been living in their swimming suites, running through the sprinklers and then two of the neighbor girls have a fun slide/swimming pool that all the kids love. Well, today Chad decided that poor little Cain was getting left out. He went and got one of the cheapest little blow up pools he could find and set it up for him. He filled it part way up with cold water and then added straight hot water to it. He wanted to be able to put him right in it and not have to wait for the sun to warm it up. We haven't bought Cain swim trunks yet because we haven't made any kind of plans to go to the water park, so we decided that for the meantime we would use CeJae's from last summer (he still fits in them). Surprisingly they fit perfect. I don't' think we'll have to get him a pair. Anyways, Chad put the trunks on him and we took him out and put him in his own little pool. He loved it!!!! It was filled a little too full for him to play on his own (without being held onto), but he still loved it. He splashed and kicked in the water. The entire time he was gabbing away. He had so much fun! Chad and I just laughed the whole time. CeJae showed up and decided that he needed to get in on the fun and jumped in. It was a great time! This is just the start to our fun filled summer and I will be sure to inform you all of our great times.

Our little helper

On Sunday we did our weekly cleaning from top to bottom. That obviously includes the bathrooms. When Chad was downstairs cleaning our bathroom Cierra went to him and said "I want to help". By that time he was nearly done with ours, but was going to be on his way to the upstairs bathroom (the kid's bathroom) so he said that she could help clean her bathroom. She was so excited. Okay, side note. I really appreciated this moment just because I know the day will soon come when it's going to be a horrible fight just to get her to do her chores or help out around the house. I know the day is coming when she's not going to want to be at home with her lame parents and annoying little brothers, so I really took this moment in. He cleaned the bath tub and did the stuff that requires the Clorox bleach and then got the cleaner in the toilet. He then let her take it from there. So the picture is one we will keep and look back at when we are fighting with her to do anything for us.

AMAZING!!!

So, I have this amazing friend Lindsey that is so incredibly crafty I can't even believe it. As most of you know she made Cain the cutest blanket when he was born, and she is the one that made the scrap book calenders with me at Christmas. Well, she's done it again. She decided she wanted to get CeJae something to help him feel better. She asked me what he would like. At that point I had no idea and left it in her hands. She really did out do herself. She made this pillow. It's hard to see from this picture, but it has Lightning McQueen on one side, and then Hudson (the blue car) on the other side. CeJae thinks that this pillow is the coolest thing ever. The day that Lindsey gave it to him he wouldn't put it down, and when he did Cain would crawl to it and snuggle with it. I am hoping that one day when she has a little time she'll make him one too. CeJae has to sleep with it every night, and when ever he lays down to take a nap. He received a ton from the hospital and then his "girl friend" Jill gave him some Batman PJ's and some goodies. Now with this pillow I can officially say he was spoiled...that's okay, any child that has to go through what he's gone through deserves it!

Home finally...

Sorry I didn't post last night. After we got home and we got all settled in, Chad went and did some very much needed grocery shopping. When he got home we put the groceries away and got started on dinner. We ate dinner, cleaned up after dinner and that was pretty much our first day at home. I was off to bed a around 7:00. Everyone else was still awake when I went to bed, but according to Chad, CeJae was right behind me. He said CeJae was so excited to sleep in his bed. He had an okay night. Around 3:00 this morning he came into our room saying his chest was hurting. He was grunting and having trouble breathing. I got him to calm down and he fell asleep with me in bed. Chad was up at 4:00 to go to work and CeJae got up too. He was still complaining of his chest hurting so Chad got him some Motrin and some more Gatorade (we are really pushing the fluids...it helps keep the Pneumonia moving). He was able to get comfortable again and fall back to sleep. He slept until around 8:30 this morning, which is the most he's slept at once since this whole sickness started. We are suppose to limit his activeness just to make sure he doesn't over do it. Even though he's home he's not all better. The x-ray still showed a lot of Pneumonia in his chest and even though his lab work looked remarkably better it's still not normal. We have to be careful for a while longer. He's on a teaspoon and a half of Augmentin twice daily, for 10 days. That is a huge dose for a 3 year old (that's an adult dose). We have to take him into the Dr.'s office this week and then again next week. He is suppose to have another chest x-ray in about 2-3 weeks from now just to make sure it's cleared up. Yesterday while the Dr. was talking to Chad and I about what we need to do and not do with him. Chad said "so in the future as soon as he's complaining of his chest or heart hurting we're going to do an x-ray right?" The Dr.'s response was kind of funny. He said "well #1 I need to listen to mom!" He said "She tried telling us and I didn't listen and that was unacceptable." I am so glad that he realizes that I am not one of those moms that takes her kid in for the tiniest of things. When I say my child is really sick they are, and I do know what I am talking about. We were both very, very irritated with him in the beginning of this whole situation, but I think we are all on the same page, and once again we are comfortable with him treating our children. We still prefer his son, but we understand that we'll have to see him sometimes. I will continue to keep you posted on CeJae, and once again I want to thank everyone for praying for him and I want to thank everyone that has or has even offered to help. We have such wonderful friends and family!

Day #4

Today was a better day, although we limited him to what he could do just as precaution. We didn't want him to have a repeat of yesterday. He's been coughing a ton more today and it is very painful for him. He gets coughing so hard and continuously that he has a hard time breathing. The Dr. didn't order any lab work today or any x-rays, but its all ordered for tomorrow morning. Chad spent the afternoon with him while I went home and got some rest in my own bed :) My dear sweet brother and sister in law watched Cierra and Cain for us. Not only did that allow for me to get some sound rest, it allowed Chad to spend a little one on one with CeJae for more than just an hour. While I was gone he did great and then right before I came back up he got a really bad headache and started to get achy again, so they gave him some more Motrin. That allowed for him to get comfortable enough to fall asleep. When I got back he was asleep, but had a really bad cold sweat thing going on. When he woke up he ate a little dinner and then got to go take his first bath since being admitted. It did him wonders. He had so much fun! So that he could bathe without worrying about his IV they taped it up and put a latex glove with the fingers cut out over it. When he got back to the room after his bath they went to hook him back up to his IV and that's when they discovered that his IV had a kink in the catheter and unfortunately they had to take it out. They called the Dr. to see if they could start the antibiotics orally, so that they could avoid having to give him another IV. The Dr. said he was not ready to be without the IV and that they needed to give him another one. This time it was a little more traumatic for him. Not only did he know what was going to happen, but they had to poke him twice. He had what the nurse called "disappearing veins". He's ate two popsicles since getting his IV and seems to be doing very good. He's in very high spirits this evening. I really hope we get some really good news tomorrow with the labs and the x-rays. We know that the last Protein Reactive test that was done he was a 26 and the normal level is under 1. We have a ways to go with that one. I just want to Thank everyone that has been praying for us and I want to send out a special thank you to Lela Miller for cooking my husband and other two children dinner last night (they said it was delicious) and I want to send a special thank you to Keith, Mandi, and Brandyn for watching Cierra and Cain while I slept. Thank you Jill for the visit, although he was a little out of it he does remember you being here and he loves his Batman. Keep you fingers crossed and the prayers going.

Cute, cute!

I had to share this...I think it's adorable! This is Cain's new found love. He loves to crawl to the garbage bags and play, play!

A better day...or so we thought

First thing this morning CeJae woke up with a fever, slight but still a fever. We immediately gave him some Tylenol. He hates taking Tylenol here because it has no flavor. He nearly throws up every time he has to take it. In fact he would if it wasn't for the method that the nurses and I have created. He takes a small sip of juice and then takes a little medicine. We continue this pattern until the medicine is all gone. It takes a little longer, but at least he's holding it down. The Dr. decided today that he wanted him on a Tylenol/Motrin routine. So with his first dose of Motrin (in combination with Tylenol) he became a whole new child. He played all afternoon. His awesome nurse disconnected his IV and took the oxygen monitor off so that he could go play in the playroom without his IV pole slowing him down. He built foam building blocks up and then crashed through them. He walked a baby in a little stroller up and down the hall. He was smiling, giggling, and even wanted to run. While we were playing a service dog named Saidee showed up and played too. Saidee even shared some candy with him. I think he would of played all day if they would of let him, but the nurses were starting to get concerned about him over doing it and having breathing issues again. So I made him help clean the playroom and we went back to his room. Just as we got back to his room Chad, Cierra and Cain showed up to visit. He was so excited when he saw that they brought him balloons. I think that made his day. While they were here he continued to play. He was trying so hard to jump on his bed and was sitting on his dad thinking he was holding him down. It was cute! Before his dad, sister and brother left he fell asleep. He woke up a little over an hour ago and needed to go pee. When I picked him up to take him to the bathroom he was burning up again. I went and got the nurse and she took his temp. This time it was 102.7. We did our Tylenol routine and gave it an hour and just checked the temp again. This time it was 102.9. We gave him some Motrin and in another hour if it's not down then the nurse is going to call the Dr. I'm not sure what the next step would be, but I have to say I am starting to feel very discouraged. I thought he was doing better because of his wonderful day, but it's turning into not such a good night. So obviously I doubt were going home tomorrow either. Dang it!

So frustrating!

As many of you know CeJae has been fighting fever, vomiting and diarrhea since early Sunday morning. The thing that absolutely broke my heart was that he would grab his chest and say "heart hurts". Thinking that this was the flu bug that has been going around I let it go for a few days, documenting the temps and counting the trips to the bathroom. Well, finally on Tuesday morning when he woke up with a raging 103.7 temperature I decided to call the Dr. and get an appointment for that day. Unfortunately they were not able to see him until 5:15 that evening so we battled the fevers all through the day. When 5:15 rolled around we had him at the Dr. That particular day my pediatrician had a student seeing patients with him. First the student came in and looked him over. After the student gave me his opinions of what was or could be wrong. He then went and got the Dr. When he came in he literally looked in his eyes, pushed on his stomach, checked his ears,listened to his lungs and said they were crystal clear. He looked in his throat and saw that it was red and said " oh, this is viral. Let it run it's course and if he's not better in a full week ( next Tuesday) then I would like to see him again. He then asked me how I was taking his temperatures. I told him I used a oral thermometer and I had him take it orally. He looked at me and said " at this age?" I said, yes. He then informed me that children at this age should not be getting their temperatures taken' orally. They are too young to keep it under their tongues and you get a wrong reading. Just to clarify CeJae does know how to take a temperature orally and does it very well. He knows to keep it under his tongue and has no issue with it. I simply said okay and we left. I was so incredibly dissatisfied I called my grandmother, my sister in law and many friends asking for advice. Everyone said the same thing...you know your son and you know how he acts when he's sick weather it be a simple cold or something bigger. Everything about this illness was telling me that it wasn't just a viral "thing" and that I needed a second opinion. I decided after talking with Chad that when he wakes up in the middle of the night with his raging fever I would then load him up and take him to the ER. Well, to my surprise that night he slept through the night and woke up at 5:00 in the morning with a minor fever of 99.7 degrees. He seemed better throughout the day and even ate a little and kept it down. Just when I started second guessing myself he spiked another fever and was in a ball on our couch crying his eyes out that his heart hurt. This is when we decided that we absolutely need a second opinion. We left for the ER. When we got to the ER they did all the normal vitals including an oxygen level which was 92 (borderline) after they took the chest x-ray that showed all but a little spot at the bottom of his right lobe is full of fluid. They instantly got IV antibiotics and fluids going and admitted him. He's improved a little today. He's no longer running a fever, but he's not peeing like they would like. He's still grunting and working to breath. They took another chest x-ray this morning and when comparing it to the one from last night it actually shows the Pneumonia is progressing down and into the left lobe. I woke this morning thinking that he's been on antibiotics for a few hours and truly thought that we'd be going home today. No such luck! According to the Dr. he's working to hard to breath and is thinking most likely the earliest he'll be going home is Saturday. :( He doesn't like the hospital and is constantly saying he wants to go home. Hopefully soon as all I can say :(