Day #4

Today was a better day, although we limited him to what he could do just as precaution. We didn't want him to have a repeat of yesterday. He's been coughing a ton more today and it is very painful for him. He gets coughing so hard and continuously that he has a hard time breathing. The Dr. didn't order any lab work today or any x-rays, but its all ordered for tomorrow morning. Chad spent the afternoon with him while I went home and got some rest in my own bed :) My dear sweet brother and sister in law watched Cierra and Cain for us. Not only did that allow for me to get some sound rest, it allowed Chad to spend a little one on one with CeJae for more than just an hour. While I was gone he did great and then right before I came back up he got a really bad headache and started to get achy again, so they gave him some more Motrin. That allowed for him to get comfortable enough to fall asleep. When I got back he was asleep, but had a really bad cold sweat thing going on. When he woke up he ate a little dinner and then got to go take his first bath since being admitted. It did him wonders. He had so much fun! So that he could bathe without worrying about his IV they taped it up and put a latex glove with the fingers cut out over it. When he got back to the room after his bath they went to hook him back up to his IV and that's when they discovered that his IV had a kink in the catheter and unfortunately they had to take it out. They called the Dr. to see if they could start the antibiotics orally, so that they could avoid having to give him another IV. The Dr. said he was not ready to be without the IV and that they needed to give him another one. This time it was a little more traumatic for him. Not only did he know what was going to happen, but they had to poke him twice. He had what the nurse called "disappearing veins". He's ate two popsicles since getting his IV and seems to be doing very good. He's in very high spirits this evening. I really hope we get some really good news tomorrow with the labs and the x-rays. We know that the last Protein Reactive test that was done he was a 26 and the normal level is under 1. We have a ways to go with that one. I just want to Thank everyone that has been praying for us and I want to send out a special thank you to Lela Miller for cooking my husband and other two children dinner last night (they said it was delicious) and I want to send a special thank you to Keith, Mandi, and Brandyn for watching Cierra and Cain while I slept. Thank you Jill for the visit, although he was a little out of it he does remember you being here and he loves his Batman. Keep you fingers crossed and the prayers going.

Cute, cute!

I had to share this...I think it's adorable! This is Cain's new found love. He loves to crawl to the garbage bags and play, play!

A better day...or so we thought

First thing this morning CeJae woke up with a fever, slight but still a fever. We immediately gave him some Tylenol. He hates taking Tylenol here because it has no flavor. He nearly throws up every time he has to take it. In fact he would if it wasn't for the method that the nurses and I have created. He takes a small sip of juice and then takes a little medicine. We continue this pattern until the medicine is all gone. It takes a little longer, but at least he's holding it down. The Dr. decided today that he wanted him on a Tylenol/Motrin routine. So with his first dose of Motrin (in combination with Tylenol) he became a whole new child. He played all afternoon. His awesome nurse disconnected his IV and took the oxygen monitor off so that he could go play in the playroom without his IV pole slowing him down. He built foam building blocks up and then crashed through them. He walked a baby in a little stroller up and down the hall. He was smiling, giggling, and even wanted to run. While we were playing a service dog named Saidee showed up and played too. Saidee even shared some candy with him. I think he would of played all day if they would of let him, but the nurses were starting to get concerned about him over doing it and having breathing issues again. So I made him help clean the playroom and we went back to his room. Just as we got back to his room Chad, Cierra and Cain showed up to visit. He was so excited when he saw that they brought him balloons. I think that made his day. While they were here he continued to play. He was trying so hard to jump on his bed and was sitting on his dad thinking he was holding him down. It was cute! Before his dad, sister and brother left he fell asleep. He woke up a little over an hour ago and needed to go pee. When I picked him up to take him to the bathroom he was burning up again. I went and got the nurse and she took his temp. This time it was 102.7. We did our Tylenol routine and gave it an hour and just checked the temp again. This time it was 102.9. We gave him some Motrin and in another hour if it's not down then the nurse is going to call the Dr. I'm not sure what the next step would be, but I have to say I am starting to feel very discouraged. I thought he was doing better because of his wonderful day, but it's turning into not such a good night. So obviously I doubt were going home tomorrow either. Dang it!

So frustrating!

As many of you know CeJae has been fighting fever, vomiting and diarrhea since early Sunday morning. The thing that absolutely broke my heart was that he would grab his chest and say "heart hurts". Thinking that this was the flu bug that has been going around I let it go for a few days, documenting the temps and counting the trips to the bathroom. Well, finally on Tuesday morning when he woke up with a raging 103.7 temperature I decided to call the Dr. and get an appointment for that day. Unfortunately they were not able to see him until 5:15 that evening so we battled the fevers all through the day. When 5:15 rolled around we had him at the Dr. That particular day my pediatrician had a student seeing patients with him. First the student came in and looked him over. After the student gave me his opinions of what was or could be wrong. He then went and got the Dr. When he came in he literally looked in his eyes, pushed on his stomach, checked his ears,listened to his lungs and said they were crystal clear. He looked in his throat and saw that it was red and said " oh, this is viral. Let it run it's course and if he's not better in a full week ( next Tuesday) then I would like to see him again. He then asked me how I was taking his temperatures. I told him I used a oral thermometer and I had him take it orally. He looked at me and said " at this age?" I said, yes. He then informed me that children at this age should not be getting their temperatures taken' orally. They are too young to keep it under their tongues and you get a wrong reading. Just to clarify CeJae does know how to take a temperature orally and does it very well. He knows to keep it under his tongue and has no issue with it. I simply said okay and we left. I was so incredibly dissatisfied I called my grandmother, my sister in law and many friends asking for advice. Everyone said the same thing...you know your son and you know how he acts when he's sick weather it be a simple cold or something bigger. Everything about this illness was telling me that it wasn't just a viral "thing" and that I needed a second opinion. I decided after talking with Chad that when he wakes up in the middle of the night with his raging fever I would then load him up and take him to the ER. Well, to my surprise that night he slept through the night and woke up at 5:00 in the morning with a minor fever of 99.7 degrees. He seemed better throughout the day and even ate a little and kept it down. Just when I started second guessing myself he spiked another fever and was in a ball on our couch crying his eyes out that his heart hurt. This is when we decided that we absolutely need a second opinion. We left for the ER. When we got to the ER they did all the normal vitals including an oxygen level which was 92 (borderline) after they took the chest x-ray that showed all but a little spot at the bottom of his right lobe is full of fluid. They instantly got IV antibiotics and fluids going and admitted him. He's improved a little today. He's no longer running a fever, but he's not peeing like they would like. He's still grunting and working to breath. They took another chest x-ray this morning and when comparing it to the one from last night it actually shows the Pneumonia is progressing down and into the left lobe. I woke this morning thinking that he's been on antibiotics for a few hours and truly thought that we'd be going home today. No such luck! According to the Dr. he's working to hard to breath and is thinking most likely the earliest he'll be going home is Saturday. :( He doesn't like the hospital and is constantly saying he wants to go home. Hopefully soon as all I can say :(

crawling stairs...

So my little Cain has decided that he is no longer a little baby. He has decided he's going to be a "big kid" like his older siblings. I was in the kitchen doing something and went to check on Cain. Him being mobile I constantly worry about him falling down the stairs ( we have not been able to find a baby gate that goes wide enough to fit across the stairs opening). When I walked around the corner I found this (pic). He just stood there and smiled at me. For anyone that know Cain, he is a bouncy baby and loves to bounce weather being held, in the jumper or apparently climbing up the stairs, because he was bouncing too. He's adorable and I can't believe that he's getting so big so fast. Its bitter sweet...I wish he could just stay my little baby for a little longer, but that doesn't seem to be in his plans.

Graduation day....

So today was the day. Cierra graduated Kindergarten. Her teacher Mrs. Spiker put together a really nice ceremony and gave each child a keepsake book that is AMAZING!!! Each book has over 100 pages in it and has pictures from each party and each field trip. It's also loaded with school work that was done throughout the year. It's so neat to see how much she has progressed since the beginning of the year. Cierra has learned so much this last year. I give full credit to Mrs. Spiker and I wonder how far she would be if she would of had a diffrent teacher. As you can tell Cierra and myself love Mrs. Spiker and wished she could follow Cierra through her school years. Cierra is looking forward to first grade, but I have to say I am so excited for the summer. We have lots planned and my goal is to continue to work on all the things that she learned this year so when she does start school again her brain is ready.

End of the year party

Cierra's Kindergarten year is coming to a quick end. Today was her "End of the year party". I have to say that Jill Dalton out did herself. She is responsible for the planning and putting together of this party. She decided she was going to make it not only fun, but also educational. She did an Idaho cowboy theme. She had 4 stations with the one being panning for gold where each child got to pan for gold and then take there very own "Gold" (fools gold) home with them along with some edible fools gold bubblegum. They also got to make a necklace with beads and a real arrow head. Third she had a "shoot em' up" game. They each got to shoot rubber bands at targets and then got an Idaho potato (the candy bar). Fourth they got to ride with a miniature pony named Sam. Jill's mother and father are from Gooding and they were kind enough to bring Sam to Pocatello for the class to get rides with. After all that fun they got to have a hot dog, chips, cupcake, candy and either lemonade or root beer for a snack. It was so much fun. I have so many pictures and I really had a hard time choosing which to post, but in the end I have chose a picture of Cierra and her two friends Oakley and Molly making their necklaces with their cute little hat and bandannas on. Tomorrow is graduation so there will be more to come.